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Relation with disease features" "tienePdf" => "en" "tieneTextoCompleto" => 0 "tieneResumen" => array:2 [ 0 => "en" 1 => "es" ] "paginas" => array:1 [ 0 => array:2 [ "paginaInicial" => "11" "paginaFinal" => "15" ] ] "titulosAlternativos" => array:1 [ "es" => array:1 [ "titulo" => "Daño en pacientes cubanos con lupus eritematoso sistémico. Relación con características de la enfermedad" ] ] "contieneResumen" => array:2 [ "en" => true "es" => true ] "contienePdf" => array:1 [ "en" => true ] "autores" => array:1 [ 0 => array:2 [ "autoresLista" => "Miguel Estévez del Toro, Araceli Chico Capote, Rafael Hechavarría, Rosa Jiménez Paneque, Elena Kokuina" "autores" => array:5 [ 0 => array:2 [ "nombre" => "Miguel" "apellidos" => "Estévez del Toro" ] 1 => array:2 [ "nombre" => "Araceli" "apellidos" => "Chico Capote" ] 2 => array:2 [ "nombre" => "Rafael" "apellidos" => "Hechavarría" ] 3 => array:2 [ "nombre" => "Rosa" "apellidos" => "Jiménez Paneque" ] 4 => array:2 [ "nombre" => "Elena" "apellidos" => "Kokuina" ] ] ] ] ] "idiomaDefecto" => "en" "EPUB" => "https://multimedia.elsevier.es/PublicationsMultimediaV1/item/epub/S2173574310700046?idApp=UINPBA00004M" "url" => "/21735743/0000000600000001/v1_201305061603/S2173574310700046/v1_201305061603/en/main.assets" ] "en" => array:14 [ "idiomaDefecto" => true "titulo" => "Fibromyalgia: Patient perception on their disease and health system. Qualitative research study" "tieneTextoCompleto" => 0 "paginas" => array:1 [ 0 => array:2 [ "paginaInicial" => "16" "paginaFinal" => "22" ] ] "autores" => array:1 [ 0 => array:4 [ "autoresLista" => "María José Escudero-Carretero, Noelia García-Toyos, María Ángeles Prieto-Rodríguez, Olivia Pérez-Corral, Joan Carles March-Cerdá, Manuela López-Doblas" "autores" => array:6 [ 0 => array:2 [ "nombre" => "María José" "apellidos" => "Escudero-Carretero" ] 1 => array:4 [ "nombre" => "Noelia" "apellidos" => "García-Toyos" "email" => array:1 [ 0 => "noelia.garcia.easp@juntadeandalucia.es" ] "referencia" => array:1 [ 0 => array:2 [ "etiqueta" => "<span class="elsevierStyleSup">¿</span>" "identificador" => "cor0005" ] ] ] 2 => array:2 [ "nombre" => "María Ángeles" "apellidos" => "Prieto-Rodríguez" ] 3 => array:2 [ "nombre" => "Olivia" "apellidos" => "Pérez-Corral" ] 4 => array:2 [ "nombre" => "Joan Carles" "apellidos" => "March-Cerdá" ] 5 => array:2 [ "nombre" => "Manuela" "apellidos" => "López-Doblas" ] ] "afiliaciones" => array:1 [ 0 => array:1 [ "entidad" => "Escuela Andaluza de Salud Pública, Campus Universitario de Cartuja, Granada, Spain" ] ] "correspondencia" => array:1 [ 0 => array:3 [ "identificador" => "cor0005" "etiqueta" => "⁎" "correspondencia" => "Corresponding author." ] ] ] ] "titulosAlternativos" => array:1 [ "es" => array:1 [ "titulo" => "Fibromialgia: percepción de pacientes sobre su enfermedad y el sistema de salud. Estudio de investigación cualitativa" ] ] "pdfFichero" => "main.pdf" "tienePdf" => true "fechaRecibido" => "2008-12-05" "fechaAceptado" => "2009-04-22" "PalabrasClave" => array:2 [ "en" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Keywords" "identificador" => "xpalclavsec112305" "palabras" => array:6 [ 0 => "Fibromyalgia" 1 => "Patient expectation" 2 => "Patient satisfaction" 3 => "Qualitative analysis" 4 => "Quality of health care" 5 => "Professional-patient relationship" ] ] ] "es" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Palabras clave" "identificador" => "xpalclavsec112306" "palabras" => array:6 [ 0 => "Fibromialgia" 1 => "Expectativas de pacientes" 2 => "Satisfacción de pacientes" 3 => "Análisis cualitativo" 4 => "Calidad de la atención de salud" 5 => "Relaciones profesional-paciente" ] ] ] ] "tieneResumen" => true "resumen" => array:2 [ "en" => array:2 [ "titulo" => "Abstract" "resumen" => "<span class="elsevierStyleSectionTitle">Objective</span><p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">To know the experiences and expectations of persons with fibromyalgia towards the health system and its professionals.</p> <span class="elsevierStyleSectionTitle">Methods</span><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Qualitative study with three focal groups. The first focal group included patients with fibromyalgia, 20 women and 1 man, receiving care in the public health system, with different assistance paths and progression. Informed Consent was required. Content analysis was done.</p> <span class="elsevierStyleSectionTitle">Results</span><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">Patients describe a difficult experience, with symptoms that may involve incapacity for daily activities. Until knowing their diagnosis, they feel a lack of understanding and also loneliness. They develop different coping strategies, as looking for information or association. From the health system they expect: attention and a fast diagnosis, accessibility to consultations, medical exams and therapies or an impulse for research. They want trained professionals, proactive attitudes, interest, empathy and information.</p> <span class="elsevierStyleSectionTitle">Discussion</span><p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">Qualitative methods seem suitable for delving into patient experience. Health assistance must improve patients’ quality of life, facilitating their assistance process and offering companionship, interest, comprehension and support.</p>" ] "es" => array:2 [ "titulo" => "Resumen" "resumen" => "<span class="elsevierStyleSectionTitle">Objetivo</span><p id="spar0025" class="elsevierStyleSimplePara elsevierViewall">Conocer la experiencia y vivencia de personas con fibromialgia y sus expectativas sobre el sistema sanitario y sus profesionales.</p> <span class="elsevierStyleSectionTitle">Métodos</span><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Diseño cualitativo a través de grupos focales. Se realizaron tres grupos, uno con pacientes que pertenecían a asociaciones de fibromialgia. Participaron 20 mujeres y 1 varón. Se incluyeron personas que recibían atención en el sistema sanitario público, con distintas trayectorias asistenciales y evolución. Se pidió consentimiento informado. Análisis de contenido.</p> <span class="elsevierStyleSectionTitle">Resultados</span><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">Describen una vivencia difícil con una sintomatología que puede ser incapacitante para las actividades cotidianas. Hasta que reciben el diagnóstico, perciben incomprensión y soledad. Desarrollan distintas estrategias de afrontamiento, como buscar información o asociarse. Esperan del sistema sanitario: atención y diagnósticos ágiles, acceso a consultas, pruebas que necesiten y terapias beneficiosas o impulso a la investigación. Quieren profesionales con formación para abordar la fibromialgia, una actitud proactiva, interés, empatía e información.</p> <span class="elsevierStyleSectionTitle">Discusión</span><p id="spar0040" class="elsevierStyleSimplePara elsevierViewall">La metodología cualitativa fue idónea para profundizar en la experiencia de pacientes. La atención sanitaria debe dirigirse a mejorar su calidad de vida facilitando su proceso asistencial y ofreciendo acompañamiento, interés, comprensión y apoyo.</p>" ] ] "bibliografia" => array:2 [ "titulo" => "References" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:32 [ 0 => array:3 [ "identificador" => "bib1" "etiqueta" => "1." "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Consensus document on the diagnosis and treatment of fibromyalgia in Catalonia" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:3 [ 0 => "A. 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2024 November | 7 | 16 | 23 |
2024 October | 24 | 47 | 71 |
2024 September | 25 | 39 | 64 |
2024 August | 35 | 78 | 113 |
2024 July | 27 | 52 | 79 |
2024 June | 27 | 28 | 55 |
2024 May | 27 | 40 | 67 |
2024 April | 28 | 24 | 52 |
2024 March | 49 | 55 | 104 |
2024 February | 22 | 27 | 49 |
2024 January | 19 | 24 | 43 |
2023 December | 15 | 24 | 39 |
2023 November | 48 | 25 | 73 |
2023 October | 25 | 28 | 53 |
2023 September | 26 | 39 | 65 |
2023 August | 21 | 6 | 27 |
2023 July | 14 | 26 | 40 |
2023 June | 14 | 25 | 39 |
2023 May | 24 | 12 | 36 |
2023 April | 12 | 6 | 18 |
2023 March | 40 | 23 | 63 |
2023 February | 17 | 23 | 40 |
2023 January | 24 | 8 | 32 |
2022 December | 29 | 46 | 75 |
2022 November | 31 | 37 | 68 |
2022 October | 42 | 46 | 88 |
2022 September | 30 | 43 | 73 |
2022 August | 32 | 68 | 100 |
2022 July | 30 | 50 | 80 |
2022 June | 26 | 30 | 56 |
2022 May | 33 | 45 | 78 |
2022 April | 30 | 38 | 68 |
2022 March | 25 | 50 | 75 |
2022 February | 18 | 32 | 50 |
2022 January | 27 | 35 | 62 |
2021 December | 14 | 41 | 55 |
2021 November | 31 | 57 | 88 |
2021 October | 39 | 54 | 93 |
2021 September | 33 | 56 | 89 |
2021 August | 29 | 58 | 87 |
2021 July | 18 | 36 | 54 |
2021 June | 26 | 54 | 80 |
2021 May | 23 | 44 | 67 |
2021 April | 39 | 104 | 143 |
2021 March | 46 | 33 | 79 |
2021 February | 45 | 27 | 72 |
2021 January | 29 | 12 | 41 |
2020 December | 23 | 17 | 40 |
2020 November | 19 | 23 | 42 |
2020 October | 18 | 16 | 34 |
2020 September | 32 | 19 | 51 |
2020 August | 13 | 20 | 33 |
2020 July | 17 | 14 | 31 |
2020 June | 30 | 22 | 52 |
2020 May | 16 | 18 | 34 |
2020 April | 22 | 22 | 44 |
2020 March | 13 | 7 | 20 |
2020 February | 2 | 0 | 2 |
2020 January | 17 | 0 | 17 |
2019 September | 4 | 0 | 4 |
2019 June | 2 | 0 | 2 |
2019 March | 2 | 0 | 2 |
2019 January | 1 | 0 | 1 |
2018 May | 2 | 2 | 4 |
2018 April | 24 | 12 | 36 |
2018 March | 31 | 15 | 46 |
2018 February | 14 | 6 | 20 |
2018 January | 8 | 7 | 15 |
2017 December | 12 | 9 | 21 |
2017 November | 13 | 10 | 23 |
2017 October | 8 | 5 | 13 |
2017 September | 12 | 8 | 20 |
2017 August | 11 | 12 | 23 |
2017 July | 12 | 13 | 25 |
2017 June | 32 | 13 | 45 |
2017 May | 25 | 16 | 41 |
2017 April | 17 | 10 | 27 |
2017 March | 14 | 47 | 61 |
2017 February | 9 | 16 | 25 |
2017 January | 16 | 12 | 28 |
2016 December | 49 | 11 | 60 |
2016 November | 32 | 11 | 43 |
2016 October | 32 | 14 | 46 |
2016 September | 39 | 14 | 53 |
2016 August | 29 | 7 | 36 |
2016 July | 17 | 10 | 27 |
2016 June | 0 | 16 | 16 |
2016 May | 0 | 12 | 12 |
2016 April | 2 | 16 | 18 |
2016 March | 0 | 15 | 15 |
2016 February | 2 | 16 | 18 |
2016 January | 2 | 13 | 15 |
2015 December | 2 | 0 | 2 |
2015 October | 1 | 0 | 1 |
2015 September | 3 | 0 | 3 |
2015 August | 2 | 0 | 2 |
2015 July | 18 | 4 | 22 |
2015 June | 31 | 9 | 40 |
2015 May | 35 | 26 | 61 |
2015 April | 22 | 17 | 39 |
2015 March | 27 | 21 | 48 |
2015 February | 25 | 13 | 38 |
2015 January | 23 | 21 | 44 |
2014 December | 32 | 21 | 53 |
2014 November | 18 | 19 | 37 |
2014 October | 19 | 17 | 36 |
2014 September | 14 | 22 | 36 |
2014 August | 19 | 16 | 35 |
2014 July | 25 | 19 | 44 |
2014 June | 36 | 13 | 49 |
2014 May | 30 | 25 | 55 |
2014 April | 32 | 104 | 136 |
2014 March | 45 | 91 | 136 |
2014 February | 34 | 37 | 71 |
2014 January | 28 | 30 | 58 |
2013 December | 30 | 21 | 51 |
2013 November | 23 | 54 | 77 |
2013 October | 35 | 36 | 71 |
2013 September | 25 | 22 | 47 |
2013 August | 22 | 14 | 36 |
2013 July | 28 | 10 | 38 |
2013 June | 30 | 11 | 41 |
2013 May | 24 | 18 | 42 |
2013 April | 19 | 18 | 37 |
2013 March | 18 | 13 | 31 |
2013 February | 25 | 6 | 31 |
2013 January | 20 | 7 | 27 |
2012 December | 15 | 8 | 23 |
2012 November | 12 | 11 | 23 |
2012 October | 1 | 3 | 4 |
2012 September | 4 | 3 | 7 |
2012 July | 1 | 0 | 1 |
2012 June | 2 | 0 | 2 |
2012 May | 2 | 0 | 2 |
2012 April | 3 | 0 | 3 |
2012 March | 1 | 0 | 1 |
2012 February | 3 | 0 | 3 |
2012 January | 3 | 0 | 3 |
2011 December | 6 | 0 | 6 |
2011 November | 2 | 0 | 2 |
2011 October | 3 | 0 | 3 |
2011 September | 1 | 0 | 1 |
2011 August | 1 | 0 | 1 |
2011 July | 2 | 0 | 2 |
2011 June | 1 | 0 | 1 |
2011 May | 3 | 0 | 3 |
2011 April | 2 | 0 | 2 |
2011 March | 3 | 0 | 3 |
2011 February | 8 | 0 | 8 |
2011 January | 5 | 0 | 5 |
2010 December | 8 | 0 | 8 |
2010 November | 1 | 0 | 1 |
2010 October | 9 | 0 | 9 |
2010 September | 2 | 0 | 2 |
2010 August | 17 | 0 | 17 |
2010 July | 12 | 0 | 12 |
2010 June | 11 | 0 | 11 |