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        "titulo" => "Abstract"
        "resumen" => "<span class="elsevierStyleSectionTitle">Objective</span><p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">To know the experiences and expectations of persons with fibromyalgia towards the health system and its professionals&#46;</p> <span class="elsevierStyleSectionTitle">Methods</span><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Qualitative study with three focal groups&#46; The first focal group included patients with fibromyalgia&#44; 20 women and 1 man&#44; receiving care in the public health system&#44; with different assistance paths and progression&#46; Informed Consent was required&#46; Content analysis was done&#46;</p> <span class="elsevierStyleSectionTitle">Results</span><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">Patients describe a difficult experience&#44; with symptoms that may involve incapacity for daily activities&#46; Until knowing their diagnosis&#44; they feel a lack of understanding and also loneliness&#46; They develop different coping strategies&#44; as looking for information or association&#46; From the health system they expect&#58; attention and a fast diagnosis&#44; accessibility to consultations&#44; medical exams and therapies or an impulse for research&#46; They want trained professionals&#44; proactive attitudes&#44; interest&#44; empathy and information&#46;</p> <span class="elsevierStyleSectionTitle">Discussion</span><p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">Qualitative methods seem suitable for delving into patient experience&#46; Health assistance must improve patients&#8217; quality of life&#44; facilitating their assistance process and offering companionship&#44; interest&#44; comprehension and support&#46;</p>"
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        "resumen" => "<span class="elsevierStyleSectionTitle">Objetivo</span><p id="spar0025" class="elsevierStyleSimplePara elsevierViewall">Conocer la experiencia y vivencia de personas con fibromialgia y sus expectativas sobre el sistema sanitario y sus profesionales&#46;</p> <span class="elsevierStyleSectionTitle">M&#233;todos</span><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Dise&#241;o cualitativo a trav&#233;s de grupos focales&#46; Se realizaron tres grupos&#44; uno con pacientes que pertenec&#237;an a asociaciones de fibromialgia&#46; Participaron 20 mujeres y 1 var&#243;n&#46; Se incluyeron personas que recib&#237;an atenci&#243;n en el sistema sanitario p&#250;blico&#44; con distintas trayectorias asistenciales y evoluci&#243;n&#46; Se pidi&#243; consentimiento informado&#46; An&#225;lisis de contenido&#46;</p> <span class="elsevierStyleSectionTitle">Resultados</span><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">Describen una vivencia dif&#237;cil con una sintomatolog&#237;a que puede ser incapacitante para las actividades cotidianas&#46; Hasta que reciben el diagn&#243;stico&#44; perciben incomprensi&#243;n y soledad&#46; Desarrollan distintas estrategias de afrontamiento&#44; como buscar informaci&#243;n o asociarse&#46; Esperan del sistema sanitario&#58; atenci&#243;n y diagn&#243;sticos &#225;giles&#44; acceso a consultas&#44; pruebas que necesiten y terapias beneficiosas o impulso a la investigaci&#243;n&#46; Quieren profesionales con formaci&#243;n para abordar la fibromialgia&#44; una actitud proactiva&#44; inter&#233;s&#44; empat&#237;a e informaci&#243;n&#46;</p> <span class="elsevierStyleSectionTitle">Discusi&#243;n</span><p id="spar0040" class="elsevierStyleSimplePara elsevierViewall">La metodolog&#237;a cualitativa fue id&#243;nea para profundizar en la experiencia de pacientes&#46; La atenci&#243;n sanitaria debe dirigirse a mejorar su calidad de vida facilitando su proceso asistencial y ofreciendo acompa&#241;amiento&#44; inter&#233;s&#44; comprensi&#243;n y apoyo&#46;</p>"
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Fibromyalgia: Patient perception on their disease and health system. Qualitative research study
Fibromialgia: percepción de pacientes sobre su enfermedad y el sistema de salud. Estudio de investigación cualitativa
María José Escudero-Carretero, Noelia García-Toyos
Corresponding author
, María Ángeles Prieto-Rodríguez, Olivia Pérez-Corral, Joan Carles March-Cerdá, Manuela López-Doblas
Escuela Andaluza de Salud Pública, Campus Universitario de Cartuja, Granada, Spain
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        "resumen" => "<span class="elsevierStyleSectionTitle">Objective</span><p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">To know the experiences and expectations of persons with fibromyalgia towards the health system and its professionals&#46;</p> <span class="elsevierStyleSectionTitle">Methods</span><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Qualitative study with three focal groups&#46; The first focal group included patients with fibromyalgia&#44; 20 women and 1 man&#44; receiving care in the public health system&#44; with different assistance paths and progression&#46; Informed Consent was required&#46; Content analysis was done&#46;</p> <span class="elsevierStyleSectionTitle">Results</span><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">Patients describe a difficult experience&#44; with symptoms that may involve incapacity for daily activities&#46; Until knowing their diagnosis&#44; they feel a lack of understanding and also loneliness&#46; They develop different coping strategies&#44; as looking for information or association&#46; From the health system they expect&#58; attention and a fast diagnosis&#44; accessibility to consultations&#44; medical exams and therapies or an impulse for research&#46; They want trained professionals&#44; proactive attitudes&#44; interest&#44; empathy and information&#46;</p> <span class="elsevierStyleSectionTitle">Discussion</span><p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">Qualitative methods seem suitable for delving into patient experience&#46; Health assistance must improve patients&#8217; quality of life&#44; facilitating their assistance process and offering companionship&#44; interest&#44; comprehension and support&#46;</p>"
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        "resumen" => "<span class="elsevierStyleSectionTitle">Objetivo</span><p id="spar0025" class="elsevierStyleSimplePara elsevierViewall">Conocer la experiencia y vivencia de personas con fibromialgia y sus expectativas sobre el sistema sanitario y sus profesionales&#46;</p> <span class="elsevierStyleSectionTitle">M&#233;todos</span><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Dise&#241;o cualitativo a trav&#233;s de grupos focales&#46; Se realizaron tres grupos&#44; uno con pacientes que pertenec&#237;an a asociaciones de fibromialgia&#46; Participaron 20 mujeres y 1 var&#243;n&#46; Se incluyeron personas que recib&#237;an atenci&#243;n en el sistema sanitario p&#250;blico&#44; con distintas trayectorias asistenciales y evoluci&#243;n&#46; Se pidi&#243; consentimiento informado&#46; An&#225;lisis de contenido&#46;</p> <span class="elsevierStyleSectionTitle">Resultados</span><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">Describen una vivencia dif&#237;cil con una sintomatolog&#237;a que puede ser incapacitante para las actividades cotidianas&#46; Hasta que reciben el diagn&#243;stico&#44; perciben incomprensi&#243;n y soledad&#46; Desarrollan distintas estrategias de afrontamiento&#44; como buscar informaci&#243;n o asociarse&#46; Esperan del sistema sanitario&#58; atenci&#243;n y diagn&#243;sticos &#225;giles&#44; acceso a consultas&#44; pruebas que necesiten y terapias beneficiosas o impulso a la investigaci&#243;n&#46; Quieren profesionales con formaci&#243;n para abordar la fibromialgia&#44; una actitud proactiva&#44; inter&#233;s&#44; empat&#237;a e informaci&#243;n&#46;</p> <span class="elsevierStyleSectionTitle">Discusi&#243;n</span><p id="spar0040" class="elsevierStyleSimplePara elsevierViewall">La metodolog&#237;a cualitativa fue id&#243;nea para profundizar en la experiencia de pacientes&#46; La atenci&#243;n sanitaria debe dirigirse a mejorar su calidad de vida facilitando su proceso asistencial y ofreciendo acompa&#241;amiento&#44; inter&#233;s&#44; comprensi&#243;n y apoyo&#46;</p>"
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Article information
ISSN: 21735743
Original language: English
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