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    "textoCompleto" => "<span class="elsevierStyleSections"><p id="par0005" class="elsevierStylePara elsevierViewall">The majority of rheumatic and musculoskeletal diseases &#40;R&#38;MSD&#41; affect the individual on a cognitive&#44; emotional and behavioural level from the moment the patient receives their diagnosis&#46; The patient begins with a series of clinical symptoms which may affect their mobility to different degrees and also lead to impairment or loss of some of daily life functions&#44; such as personal care&#44; work and other basic activities&#44; thereby leading to direct or indirect alterations to the person&#39;s financial independence and social roles&#46;</p><p id="par0010" class="elsevierStylePara elsevierViewall">It is important to consider this disease from a biopsychosocial perspective&#44; as a system where the modification of one dimension may lead to changes in others&#46; In this sense&#44; the severity over the course of the disease may lead to an increase in negative emotions &#40;anxiety&#44; rage or sadness&#41;&#44; pain&#44; disability and reduction of the ability to work&#44; carry out everyday tasks and social activities&#46; The currently recommended biopsychosocial model for an approach to any pathology&#44; calls upon the detection and treatment of patients&#8217; psychological and social problems&#44; not a mere focus on their physical problems&#44; since it has been proven that control of psychological problems&#44; offering information and correct adaptation improves the doctor-patient relationship and the course of the disease&#46;<a class="elsevierStyleCrossRef" href="#bib0080"><span class="elsevierStyleSup">1</span></a></p><p id="par0015" class="elsevierStylePara elsevierViewall">Cognitive assessment which is the patient&#39;s interpretation of the status of their disease has essential repercussions on their mood and how they are able to cope&#46; Patients with a more negative view of their disease &#40;catastrophist&#41; or who have a low level of belief in their ability to function as a result of the disease are less susceptible to carrying out effective behavioural strategies such as adhering to medical recommendations or adopting active methods of coping such as&#44; for example&#44; performing the recommended physical activity&#46;<a class="elsevierStyleCrossRef" href="#bib0085"><span class="elsevierStyleSup">2</span></a> In contrast&#44; those people with greater resources in coping with their disease and who are able to seek alternatives or solutions for themselves usually have a more favourable evolution&#46;<a class="elsevierStyleCrossRef" href="#bib0090"><span class="elsevierStyleSup">3</span></a> Certain beliefs and attitudes towards disease prognosis&#44; the need from treatment or fear of side effects of drugs may lead to poor treatment adherence&#46;<a class="elsevierStyleCrossRef" href="#bib0095"><span class="elsevierStyleSup">4</span></a></p><p id="par0020" class="elsevierStylePara elsevierViewall">During the course of the disease attention must be paid to the patient&#39;s emotional sphere&#46; With regard to symptoms of anxiety and&#47;or depression&#44; it appears that the first three months subsequent to diagnosis are those of the greatest risk in this sense&#44; and from 3 years onwards the incidence largely decreases&#46; Among the factors which are associated with a higher risk of psychological distress are&#58; female gender&#59; a primary educational level&#59; being an active employee and having a lower income level&#46; The clinical activity of the disease and the extent to which functional levels are affected are also determining factors with regard to the possibility of psychological distress&#46;<a class="elsevierStyleCrossRef" href="#bib0100"><span class="elsevierStyleSup">5</span></a></p><p id="par0025" class="elsevierStylePara elsevierViewall">The novelty&#44; unpredictability and uncontrollability of the disease and of the different situations accompanying it may be major factors of stress&#46; From the minute a person begins to experience symptoms&#44; when the diagnosis of the disease is received&#44; when they are facing therapeutic failure&#44; when they have to start a new treatment&#44; etc&#46; the patients are facing situations which meet all the typical traits that triggering off stress&#58; new situations for them&#44; about which there is little information&#44; difficult to predict their appearance and their evolution and with major consequences for their life and their everyday existence that they sometimes regard as limited&#46;</p><p id="par0030" class="elsevierStylePara elsevierViewall">The clinical symptoms which are the major stressors for patients with R&#38;MSD are the ones mainly affecting their quality of life&#46;</p><p id="par0035" class="elsevierStylePara elsevierViewall">Firstly pain&#44; which is present to a greater or lesser extent during the course of these diseases and is one of its major stressors&#46; Patients consider this to be key when assessments on their state of health and the state of their condition are made&#46;<a class="elsevierStyleCrossRef" href="#bib0105"><span class="elsevierStyleSup">6</span></a></p><p id="par0040" class="elsevierStylePara elsevierViewall">In people with R&#38;MSD disability presents as a consequence of disease and pain&#46; It has a limiting effect on them for many of their activities&#44; and is perceived by patients as one of the most frustrating aspects of their illness&#46; Limitations and depending on others as a result&#44; linked to the before-mentioned pain&#44; are the most outstanding stressors associated with R&#38;MSD in most studies&#46; In many cases their ability to walk and do exercise is limited&#44; occasionally affecting their ability to carry out domestic tasks&#46; Patients who are sportspeople are particularly disadvantaged as the practice of these activities is drastically reduced&#46;</p><p id="par0045" class="elsevierStylePara elsevierViewall">Fatigue is a subjective sensation of tiredness or exhaustion which is not relieved by resting&#46; Patients describe the fatigue as physical&#44; cognitive and emotional&#44; which is highly incapacitating for them and the percentages of severe fatigue vary between 35&#37; and 80&#37;&#44; depending on the pathology&#46;<a class="elsevierStyleCrossRef" href="#bib0110"><span class="elsevierStyleSup">7</span></a></p><p id="par0050" class="elsevierStylePara elsevierViewall">On many occasions these stressors are accompanied by complications with finances and employment&#46; It has been noted that the support from colleagues&#44; perception of the importance of work and self-sufficiency in the workplace are factors which help the patient to remain in an active situation of employment&#46;<a class="elsevierStyleCrossRef" href="#bib0115"><span class="elsevierStyleSup">8</span></a></p><p id="par0055" class="elsevierStylePara elsevierViewall">Many patients with R&#38;MSD refer to relevant changes in social and family relationships&#46; Half of patients suffer from dysfunction in areas of social interaction&#44; in communication with others and in emotional behaviour and two thirds state that they have experienced a drastic reduction in leisure or pleasurable activities&#46; This is seriously damaging to their quality of life since apart from reducing social activities the patient loses the ability to enjoy him or herself&#44; due to pain and the difficulty in performing some of these activities&#46; Pastimes and hobbies of these patients are diminished&#44; particularly in those cases where some kind of physical effort is required&#46; The patient goes out less for leisure activities&#44; such as going out to dinner&#44; the cinema or shopping&#46; Meeting friends is also affected&#44; sometimes because the patient is not able to spend long hours in the same place or in the same posture&#46; A similar thing occurs with inviting friends home&#44; as this always requires extra effort for the host and if this is a patient&#44; they prefer to avoid it&#46;</p><p id="par0060" class="elsevierStylePara elsevierViewall">Many patients with R&#38;MSD perceive of not being understood in their enviornment&#46;<a class="elsevierStyleCrossRef" href="#bib0120"><span class="elsevierStyleSup">9</span></a> At present new treatment strategies and drugs result in external manifestations of the disease not being obvious in the majority of cases and experiences such as fatigue&#44; stiffness or pain itself and its impact are not appropriately appreciated by other people&#46; This situation may have an effect on the family and the social support the patient receives&#44; which is of vital importance&#46;<a class="elsevierStyleCrossRefs" href="#bib0125"><span class="elsevierStyleSup">10&#44;11</span></a></p><p id="par0065" class="elsevierStylePara elsevierViewall">The appearance of the disease greatly affects the previously established family dynamics and requires a period of adaptation and restructuring of this dynamic or family functioning&#46; The roles of the family usually change temporarily or permanently&#44; since the patient often has to withdraw from their normal activities which are taken on by other family members&#46; It is important that all members of the patient&#39;s family have the necessary resources to understand and be familiar with the disease&#44; so as to make it into a source of positive social support for the patient and help them manage their disease appropriately&#46;</p><p id="par0070" class="elsevierStylePara elsevierViewall">Sexuality may also be affected in R&#38;MSD&#44; and is also usually accompanied by high levels of stress&#46; Sexuality is part of the whole quality of life and therefore not being able to enjoy it is a type of disability&#46; Approximately half of patients with R&#38;MSD suffer from some type of problem in their relationships and problems with several joints during their sexual activities&#46;<a class="elsevierStyleCrossRef" href="#bib0135"><span class="elsevierStyleSup">12</span></a> However&#44; this is rarely discussed at the surgery&#46;<a class="elsevierStyleCrossRef" href="#bib0140"><span class="elsevierStyleSup">13</span></a> If problems are detected in the sexual sphere&#44; there are resources which may be of use to the patients&#44;<a class="elsevierStyleCrossRef" href="#bib0145"><span class="elsevierStyleSup">14</span></a> and in cases of doubt or serious dysfunction&#44; the patient may be referred to the appropriate specialist&#46;</p><p id="par0075" class="elsevierStylePara elsevierViewall">Finally an area which is very highly affected in patients with R&#38;MSD is the quality of sleep&#46; It has been estimated that between 50&#37; and 70&#37; of patients with R&#38;MSD present with some type of problem with sleep such as difficulty getting to sleep&#44; or sleep not being reparative&#44; or they have insomnia&#44; wake up during the night or are overtired during the day&#46;<a class="elsevierStyleCrossRef" href="#bib0150"><span class="elsevierStyleSup">15</span></a></p><p id="par0080" class="elsevierStylePara elsevierViewall">Our main conclusion is that R&#38;MSD have a high impact on the psychosocial sphere of the patients&#44; and therefore a biopsychosocial approach to them is needed&#44; with treatment being carried out by a multidisciplinary team&#46; Improvements in patients&#8217; education and information&#44; together with the involvement of the family and social environment in the process of the disease are key factors&#44; aimed at the patient acquiring the necessary support resources for appropriate adjustment to the disease&#46;</p></span>"
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        "nota" => "<p class="elsevierStyleNotepara" id="npar0005">Please cite this article as&#58; Leon Mateos L&#46; Documento de recomendaciones de experto sobre las necesidades psicol&#243;gicas del paciente con artritis reumatoide&#46; Reumatol Clin&#46; 2020&#59;16&#58;1&#8211;2&#46;</p>"
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Editorial
Psychosocial aspects of rheumatic and musculoskeletal diseases
Aspectos psicosociales de las enfermedades reumáticas y musculoesqueléticas
Leticia Leon Mateos
IDISSC, Reumatología, Hospital Clínico San Carlos, Madrid, Spain
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        "titulo" => "Aspectos psicosociales de las enfermedades reum&#225;ticas y musculoesquel&#233;ticas"
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    "textoCompleto" => "<span class="elsevierStyleSections"><p id="par0005" class="elsevierStylePara elsevierViewall">The majority of rheumatic and musculoskeletal diseases &#40;R&#38;MSD&#41; affect the individual on a cognitive&#44; emotional and behavioural level from the moment the patient receives their diagnosis&#46; The patient begins with a series of clinical symptoms which may affect their mobility to different degrees and also lead to impairment or loss of some of daily life functions&#44; such as personal care&#44; work and other basic activities&#44; thereby leading to direct or indirect alterations to the person&#39;s financial independence and social roles&#46;</p><p id="par0010" class="elsevierStylePara elsevierViewall">It is important to consider this disease from a biopsychosocial perspective&#44; as a system where the modification of one dimension may lead to changes in others&#46; In this sense&#44; the severity over the course of the disease may lead to an increase in negative emotions &#40;anxiety&#44; rage or sadness&#41;&#44; pain&#44; disability and reduction of the ability to work&#44; carry out everyday tasks and social activities&#46; The currently recommended biopsychosocial model for an approach to any pathology&#44; calls upon the detection and treatment of patients&#8217; psychological and social problems&#44; not a mere focus on their physical problems&#44; since it has been proven that control of psychological problems&#44; offering information and correct adaptation improves the doctor-patient relationship and the course of the disease&#46;<a class="elsevierStyleCrossRef" href="#bib0080"><span class="elsevierStyleSup">1</span></a></p><p id="par0015" class="elsevierStylePara elsevierViewall">Cognitive assessment which is the patient&#39;s interpretation of the status of their disease has essential repercussions on their mood and how they are able to cope&#46; Patients with a more negative view of their disease &#40;catastrophist&#41; or who have a low level of belief in their ability to function as a result of the disease are less susceptible to carrying out effective behavioural strategies such as adhering to medical recommendations or adopting active methods of coping such as&#44; for example&#44; performing the recommended physical activity&#46;<a class="elsevierStyleCrossRef" href="#bib0085"><span class="elsevierStyleSup">2</span></a> In contrast&#44; those people with greater resources in coping with their disease and who are able to seek alternatives or solutions for themselves usually have a more favourable evolution&#46;<a class="elsevierStyleCrossRef" href="#bib0090"><span class="elsevierStyleSup">3</span></a> Certain beliefs and attitudes towards disease prognosis&#44; the need from treatment or fear of side effects of drugs may lead to poor treatment adherence&#46;<a class="elsevierStyleCrossRef" href="#bib0095"><span class="elsevierStyleSup">4</span></a></p><p id="par0020" class="elsevierStylePara elsevierViewall">During the course of the disease attention must be paid to the patient&#39;s emotional sphere&#46; With regard to symptoms of anxiety and&#47;or depression&#44; it appears that the first three months subsequent to diagnosis are those of the greatest risk in this sense&#44; and from 3 years onwards the incidence largely decreases&#46; Among the factors which are associated with a higher risk of psychological distress are&#58; female gender&#59; a primary educational level&#59; being an active employee and having a lower income level&#46; The clinical activity of the disease and the extent to which functional levels are affected are also determining factors with regard to the possibility of psychological distress&#46;<a class="elsevierStyleCrossRef" href="#bib0100"><span class="elsevierStyleSup">5</span></a></p><p id="par0025" class="elsevierStylePara elsevierViewall">The novelty&#44; unpredictability and uncontrollability of the disease and of the different situations accompanying it may be major factors of stress&#46; From the minute a person begins to experience symptoms&#44; when the diagnosis of the disease is received&#44; when they are facing therapeutic failure&#44; when they have to start a new treatment&#44; etc&#46; the patients are facing situations which meet all the typical traits that triggering off stress&#58; new situations for them&#44; about which there is little information&#44; difficult to predict their appearance and their evolution and with major consequences for their life and their everyday existence that they sometimes regard as limited&#46;</p><p id="par0030" class="elsevierStylePara elsevierViewall">The clinical symptoms which are the major stressors for patients with R&#38;MSD are the ones mainly affecting their quality of life&#46;</p><p id="par0035" class="elsevierStylePara elsevierViewall">Firstly pain&#44; which is present to a greater or lesser extent during the course of these diseases and is one of its major stressors&#46; Patients consider this to be key when assessments on their state of health and the state of their condition are made&#46;<a class="elsevierStyleCrossRef" href="#bib0105"><span class="elsevierStyleSup">6</span></a></p><p id="par0040" class="elsevierStylePara elsevierViewall">In people with R&#38;MSD disability presents as a consequence of disease and pain&#46; It has a limiting effect on them for many of their activities&#44; and is perceived by patients as one of the most frustrating aspects of their illness&#46; Limitations and depending on others as a result&#44; linked to the before-mentioned pain&#44; are the most outstanding stressors associated with R&#38;MSD in most studies&#46; In many cases their ability to walk and do exercise is limited&#44; occasionally affecting their ability to carry out domestic tasks&#46; Patients who are sportspeople are particularly disadvantaged as the practice of these activities is drastically reduced&#46;</p><p id="par0045" class="elsevierStylePara elsevierViewall">Fatigue is a subjective sensation of tiredness or exhaustion which is not relieved by resting&#46; Patients describe the fatigue as physical&#44; cognitive and emotional&#44; which is highly incapacitating for them and the percentages of severe fatigue vary between 35&#37; and 80&#37;&#44; depending on the pathology&#46;<a class="elsevierStyleCrossRef" href="#bib0110"><span class="elsevierStyleSup">7</span></a></p><p id="par0050" class="elsevierStylePara elsevierViewall">On many occasions these stressors are accompanied by complications with finances and employment&#46; It has been noted that the support from colleagues&#44; perception of the importance of work and self-sufficiency in the workplace are factors which help the patient to remain in an active situation of employment&#46;<a class="elsevierStyleCrossRef" href="#bib0115"><span class="elsevierStyleSup">8</span></a></p><p id="par0055" class="elsevierStylePara elsevierViewall">Many patients with R&#38;MSD refer to relevant changes in social and family relationships&#46; Half of patients suffer from dysfunction in areas of social interaction&#44; in communication with others and in emotional behaviour and two thirds state that they have experienced a drastic reduction in leisure or pleasurable activities&#46; This is seriously damaging to their quality of life since apart from reducing social activities the patient loses the ability to enjoy him or herself&#44; due to pain and the difficulty in performing some of these activities&#46; Pastimes and hobbies of these patients are diminished&#44; particularly in those cases where some kind of physical effort is required&#46; The patient goes out less for leisure activities&#44; such as going out to dinner&#44; the cinema or shopping&#46; Meeting friends is also affected&#44; sometimes because the patient is not able to spend long hours in the same place or in the same posture&#46; A similar thing occurs with inviting friends home&#44; as this always requires extra effort for the host and if this is a patient&#44; they prefer to avoid it&#46;</p><p id="par0060" class="elsevierStylePara elsevierViewall">Many patients with R&#38;MSD perceive of not being understood in their enviornment&#46;<a class="elsevierStyleCrossRef" href="#bib0120"><span class="elsevierStyleSup">9</span></a> At present new treatment strategies and drugs result in external manifestations of the disease not being obvious in the majority of cases and experiences such as fatigue&#44; stiffness or pain itself and its impact are not appropriately appreciated by other people&#46; This situation may have an effect on the family and the social support the patient receives&#44; which is of vital importance&#46;<a class="elsevierStyleCrossRefs" href="#bib0125"><span class="elsevierStyleSup">10&#44;11</span></a></p><p id="par0065" class="elsevierStylePara elsevierViewall">The appearance of the disease greatly affects the previously established family dynamics and requires a period of adaptation and restructuring of this dynamic or family functioning&#46; The roles of the family usually change temporarily or permanently&#44; since the patient often has to withdraw from their normal activities which are taken on by other family members&#46; It is important that all members of the patient&#39;s family have the necessary resources to understand and be familiar with the disease&#44; so as to make it into a source of positive social support for the patient and help them manage their disease appropriately&#46;</p><p id="par0070" class="elsevierStylePara elsevierViewall">Sexuality may also be affected in R&#38;MSD&#44; and is also usually accompanied by high levels of stress&#46; Sexuality is part of the whole quality of life and therefore not being able to enjoy it is a type of disability&#46; Approximately half of patients with R&#38;MSD suffer from some type of problem in their relationships and problems with several joints during their sexual activities&#46;<a class="elsevierStyleCrossRef" href="#bib0135"><span class="elsevierStyleSup">12</span></a> However&#44; this is rarely discussed at the surgery&#46;<a class="elsevierStyleCrossRef" href="#bib0140"><span class="elsevierStyleSup">13</span></a> If problems are detected in the sexual sphere&#44; there are resources which may be of use to the patients&#44;<a class="elsevierStyleCrossRef" href="#bib0145"><span class="elsevierStyleSup">14</span></a> and in cases of doubt or serious dysfunction&#44; the patient may be referred to the appropriate specialist&#46;</p><p id="par0075" class="elsevierStylePara elsevierViewall">Finally an area which is very highly affected in patients with R&#38;MSD is the quality of sleep&#46; It has been estimated that between 50&#37; and 70&#37; of patients with R&#38;MSD present with some type of problem with sleep such as difficulty getting to sleep&#44; or sleep not being reparative&#44; or they have insomnia&#44; wake up during the night or are overtired during the day&#46;<a class="elsevierStyleCrossRef" href="#bib0150"><span class="elsevierStyleSup">15</span></a></p><p id="par0080" class="elsevierStylePara elsevierViewall">Our main conclusion is that R&#38;MSD have a high impact on the psychosocial sphere of the patients&#44; and therefore a biopsychosocial approach to them is needed&#44; with treatment being carried out by a multidisciplinary team&#46; Improvements in patients&#8217; education and information&#44; together with the involvement of the family and social environment in the process of the disease are key factors&#44; aimed at the patient acquiring the necessary support resources for appropriate adjustment to the disease&#46;</p></span>"
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        "nota" => "<p class="elsevierStyleNotepara" id="npar0005">Please cite this article as&#58; Leon Mateos L&#46; Documento de recomendaciones de experto sobre las necesidades psicol&#243;gicas del paciente con artritis reumatoide&#46; Reumatol Clin&#46; 2020&#59;16&#58;1&#8211;2&#46;</p>"
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Article information
ISSN: 21735743
Original language: English
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Idiomas
Reumatología Clínica (English Edition)
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