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Vol. 13. Issue 3.
Pages 139-144 (May - June 2017)
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Vol. 13. Issue 3.
Pages 139-144 (May - June 2017)
Original Article
DOI: 10.1016/j.reumae.2016.04.010
Readability, Relevance and Quality of the Information in Spanish on the Web for Patients With Rheumatoid Arthritis
Legibilidad, relevancia y calidad de la información en español en la Web para pacientes con artritis reumatoide
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Jose Dionisio Castillo-Ortiza,
Corresponding author
josedco006@hotmail.com

Corresponding author.
, Jose de Jesus Valdivia-Nunoa, Andrea Ramirez-Gomeza, Heber Garagarza-Mariscala, Carlos Gallegos-Riosa, Gabriel Flores-Hernandeza, Luis Hernandez-Sancheza, Victor Brambila-Barbaa, Jose Juan Castaneda-Sancheza, Zalathiel Barajas-Ochoaa, Angel Suarez-Ricoa, Jorge Manuel Sanchez-Gonzalezb, Cesar Ramos-Remusa,b
a Unidad de Investigación en Enfermedades Crónico-Degenerativas, Guadalajara, Mexico
b Vicerrectoría Académica, Universidad Autónoma de Guadalajara, Zapopan, Mexico
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Tables (5)
Table 1. Features of the Relevant Web Pages.
Table 2. General Characteristics of the Relevant Websites.
Table 3. Evaluation of the Quality of the 202 Web Pages.
Table 4. Legibility of the 202 Relevant Web Pages (INFLESZ).
Table 5. Characteristics of the Web Pages of Medical Institutions.
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Abstract
Background

Education is a major health determinant and one of the main independent outcome predictors in rheumatoid arthritis (RA). The use of the Internet by patients has grown exponentially in the last decade.

Objective

To assess the characteristics, legibility and quality of the information available in Spanish in the Internet regarding to rheumatoid arthritis.

Material and methods

The search was performed in Google using the phrase rheumatoid arthritis. Information from the first 30 pages was evaluated according to a pre-established format (relevance, scope, authorship, type of publication and financial objective). The quality and legibility of the pages were assessed using two validated tools, DISCERN and INFLESZ respectively. Data extraction was performed by senior medical students and evaluation was achieved by consensus.

Results

The Google search returned 323 hits but only 63% were considered relevant; 80% of them were information sites (71% discussed exclusively RA, 44% conventional treatment and 12% alternative therapies) and 12.5% had a primary financial interest. 60% of the sites were created by nonprofit organizations and 15% by medical associations. Web sites posted by medical institutions from the United States of America were better positioned in Spanish (Arthritis Foundation 4th position and American College of Rheumatology 10th position) than web sites posted by Spanish speaking countries.

Conclusions

There is a risk of disinformation for patients with RA that use the Internet. We identified a window of opportunity for rheumatology medical institutions from Spanish-speaking countries to have a more prominent societal involvement in the education of their patients with RA.

Keywords:
Rheumatoid arthritis
Internet
Web
Education
Resumen

La educación es un determinante mayor de salud y uno de los predictores independientes de desenlace en artritis reumatoide (AR). El uso del Internet por pacientes ha crecido en forma exponencial en la última década.

Objetivos

Evaluar las características, legibilidad y calidad de la información disponible en Internet en idioma español en relación con la AR.

Material y métodos

Se buscó la frase AR en Google. Se evaluaron las primeras 30 páginas de resultados de acuerdo con un formato diseñado ex profeso (relevancia, autoría, tipo de publicación, enfermedad discutida e interés financiero); además se evaluaron la calidad y la legibilidad de las páginas, con las herramientas DISCERN e INFLESZ, respectivamente. La extracción de datos se realizó por médicos pasantes y la evaluación fue por consenso.

Resultados

Se obtuvieron 323 resultados, pero solo el 63% de ellos fueron relevantes; el 80% de estos fueron sitios de información (71% discutían exclusivamente AR, 44% terapia convencional y 12% terapias alternativas). Un 12,5% tenía interés financiero. El 60% de los sitios fueron creados por organizaciones no lucrativas y 15% por asociaciones médicas. Las asociaciones médicas de Estados Unidos de América se posicionan mejor en español (Arthritis Foundation en la posición 4 y el American College of Rheumatology en la 10) que los sitios web de países de habla hispana.

Conclusiones

Existe riesgo de desinformación para los pacientes con AR que utilizan la Web. Se identifica además áreas de oportunidad para instituciones médicas de países de habla hispana para tener un mayor involucramiento social en la educación de sus pacientes.

Palabras clave:
Artritis reumatoide
Internet
Web
Educación

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